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Advocacy

Lung Cancer Advocacy Opportunities for Resisters and Their Caregivers/Family Members/Friends

Many of the things we take for granted as lung cancer patients are those people who have made a difference to our lives either by working for more research funding, making sure that clinical trial and lung caner guidelines as well as cancer care are more patient-centric. We benefit in many ways from these “Lung Cancer Advocates.” The sad thing is that we have lost many to this disease and so we constantly need new ones to carry on in their footsteps.

If you as a lung cancer patient/survivor, caregiver, family member or friend would like to take on advocacy work either politically or scientifically, there are free training and opportunities for all.

Policy-Related Advocacy

Science-Related Advocacy

  • Research Advocacy Network: The Basics for Research Advocacy online course is a free, self paced, narrated course.  Each of the three modules will take 15-20 minutes to complete. You may complete all three modules in one session or stop and return to the course at a later time. After completing each module of the course you will have the option to print a certificate of completion. Enrollees may also participate in the accompanying discussion group in the learning portal. https://researchadvocacy.org/advocate-institute/online-course-basics-research-advocacy
  • IASLC STARS Program (Supportive Training for Advocates on Research and Science): aims to increase the number of patient research advocates (PRAs) equipped to provide accurate scientific translation in their online or real-life groups for patients with lung cancer and their caregivers, and to provide the patient perspective for lung cancer research and policy. https://www.iaslc.org/patient-advocacy/stars
  • AACR Scientist-Survivor Programhttps://www.aacr.org/patients-caregivers/patient-advocacy/scientist-survivor-program/scientist-survivor-program-requirements-guidelines/
    • Want to learn more about cancer research and public policy;
    • Actively support cancer research through policy advocacy, research advocacy, and/or community outreach;
    • Have a constituency with which to share the knowledge they gain through the program;
    • Are in a position to communicate the knowledge gained from the program to colleagues and/or constituents and have access to avenues to disseminate this information;
    • Are able to participate in all components of the multiple-day program.
  • Department of Defense CDMRP Lung Cancer Research Program:  The Congressionally Directed Medical Research Programs (CDMRP) welcomes patients, survivors, family members, and advocates to play a pivotal role in the future of biomedical research funding. To transform healthcare for our Service members and the American public, the CDMRP looks to those who have the most experience, who understand the effects of a disease, an injury, or a condition – the individuals (consumers) living with breast cancer, orthopaedic injury, Parkinson’s disease, etc. By integrating patients, survivors, family members and/or care takers into the scientific review process, the CDMRP is able to enrich the scientific review with personal perspective, passion, and a sense of urgency that ensures the human dimension is incorporated in the research focus. Over 2,000 consumers have served as Peer and Programmatic reviewers since 1995. By partnering with consumers, the CDMRP strives to find and fund collaborative research that discovers, develops, and delivers health care solutions for Service members, Veterans, and the American public. https://cdmrp.health.mil/CWG/default