egfr lung cancer resisters group We are a grassroots patient-driven community, dedicated exclusively to changing EGFR positive lung cancer into a manageable, chronic disease. JOIN EGFR RESISTERS DONATE NOW LATEST NEWSLETTERS 2nd Annual Research Summit LEARN MORE 2021 Award Program LEARN MORE ASCO 2020 Highlights Project PRIORITY (Patient Reported Initiative On Resistance, Incidence, Treatment studY), is a collaboration between LUNGevity Foundation and the EGFR Resisters to understand the unmet needs of the EGFR-positive lung cancer community. In Memoriam The Founding 7 – Allen Lee, Anita Figueras, Colleen Sturdivant, Ildiko Medve, Ivy Elkins, Jill Feldman and Teri Kennedy. Our Founders Learn More EGFR cancer co founders in memoriam

Our Mission

Lung cancer patients with mutations in the EGFR gene represent a
significant amount of patients diagnosed with non-small cell lung cancer.
Approximately 10-15% of patients with non-small cell lung cancer in the
United States and 35% in Asia have an EGFR positive mutation. In the U.S., more
than 20,000 people are diagnosed with EGFR positive lung cancer each

EGFR Resisters is comprised of over 1700 members from over 30 countries. Out
of the 65% of members who have provided data, 73% have already
developed acquired resistance to their current EGFR treatment. The types of
resistance mechanisms seen in this community are consistent with results
that have been published from other studies.

We are working to increase the size of our EGFR Resisters community with
the assistance of advocacy groups and medical professionals. Our aim is
to use the strength of our collaboration to drive important research
questions and fund novel research and clinical trials.

Although there has been an increase in progression-free survival in
patients due to EGFR TKI (Tyrosine Kinase Inhibitors, commonly known as TKIs),
patients eventually develop acquired resistance. With each generation of
TKIs developed, more mechanisms of resistance are discovered; therefore
the development of drugs to target resistance mutations and other
mechanisms of resistance are desperately needed.

The EGFR Resisters is a group of people living with and/or personally
affected by EGFR positive lung cancer. The purpose of founding the group
is to build a community of survivors and caregivers to share knowledge,
provide support, and confidentially collect patient data.

We are using a survey to collect information such as patient
demographics, details of lung cancer diagnosis, specific type of EGFR positive
mutation, acquired resistance and mechanism of resistance. Patient data
will be aggregated and analyzed to identify trends such as (but not limited to) commonalities
and differences in mechanisms of resistance.

The goal of the EGFR Resisters is to improve outcomes for people with
EGFR positive lung cancer by accelerating research. Our ultimate
objective is changing EGFR positive lung cancer into a manageable chronic disease.

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Do you (or a loved one) have EGFR-positive lung cancer? Your voice matters! By participating in this survey, YOU could help shape EGFR-positive lung cancer treatment development and future research, ensuring that they address what is most important to the EGFR-positive lung cancer community.
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