Category

Advocacy

Diversifying Clinical Trial Inclusion Criteria: Currrent Challenges and Potential Solutions Advocacy

Diversifying Clinical Trial Inclusion Criteria: Currrent Challenges and Potential Solutions

*January 2021* Jill Feldman, co-founder of the EGFR Resisters, presented on Diversifying Clinical Trial Inclusion Criteria: Currrent Challenges and Potential Solutions to help ensure every decision, starting at concept is looked at through a health equity lens. Creating clinical trials WITH us not just FOR us! It is a moral imperative…
laurabbook@gmail.com
March 6, 2021
Oncogene-specific advocacy groups bring a patient-centric perspective to studies of lung cancer Advocacy

Oncogene-specific advocacy groups bring a patient-centric perspective to studies of lung cancer

*November 2020* Communities sharing particular types of the disease are helping steer research towards better therapies. Patient advocates often want immediate results but this can be at odds with the slow pace of scientific investigation. Yet clinicians and scientists who have collaborated with advocacy groups say they are an invaluable…
laurabbook@gmail.com
January 6, 2021
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Project PRIORITY: Why it matters to the EGFR-positive lung cancer community AdvocacyCoping With CancerResearch

Project PRIORITY: Why it matters to the EGFR-positive lung cancer community

*December 2019* Project PRIORITY (Patient Reported Initiative On Resistance, Incidence, Treatment studY), is a collaboration between LUNGevity Foundation and the EGFR Resisters—a grassroots, patient-driven community dedicated exclusively to changing EGFR-positive lung cancer into a manageable chronic disease. Goal of Project PRIORITY To understand unmet needs of the EGFR-positive lung cancer…
laurabbook@gmail.com
December 20, 2019
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Learnings from EGFR Resisters’ Project Priority at IASLC 2019 AdvocacyCoping With Cancer

Learnings from EGFR Resisters’ Project Priority at IASLC 2019

*October 2019*  Presented by EGFR Resisters Co-Founders. * Hospitalization - While TKIs are superior to other treatments for EGFR positive lung cancer patients, there is still a large number that experience severe side effects that require urgent medical care and/or hospitalization. * Mental health - it only represents depression diagnosed…
laurabbook@gmail.com
November 8, 2019